Feeling emotional

So I know I'm PMSing but my heart is really heavy today. A friend of mine's little boy had a seizure over the weekend. He is okay and they will be doing some tests soon. Another friend her little boy has RSV. I guess I'm just sad because I know the amount of stress and worry these two moms are going through. I hate it when kids are sick. It breaks my heart. I hope everyone gets better and has all of their answers very soon. Prayers go out to all of them and their families.

Looney mommy gets inked

I got a tattoo on Wednesday for my son's ILD. I love it. Sure its not perfect but its a forever way to show my son how proud I am of him. I want him to know that I support him, and I'm trying to bring awareness every where I go. Since his disease doesn't have a ribbon or a color I decided to go with a pin wheel. The pin wheel is based off the one from the foundation's website. I had it colored blue and white to represent air. It took an hour and a half and it hurt really bad. It still hurts really bad. But when I think about everything he has been through its a very small sacrifice on my part. I want people to ask me about it, I want to tell people about this disease that affects my son and children like him. I hope he likes it when he gets older. Mommy loves you Amadeus.

Looney mommy strikes again

Week it's been two weeks today that Ami got his g tube installed. I have to say I'm still not happy with it. It's a giant pain in my ass, it still wierds me out, and I all around hate it. Took him to the doctor on Tuesday for a weight check. He's lost 2 ounces. Yes I know it's only two ounces but good grief he ate more calories than he needs to maintain his weight and he lost. Tuesday I was ready to throw in the towel, and beat my head against the wall. So we've drastically upped the amount of food we give him everyday and what happens he throws up. So we lost a good 200 calories. And poor Daddy, he is the one who got puked on. I thought he was going to throw up too. Over all it's not been a good week. It seems nothing has gone right and he still has one more doctors appointment this week. I love my son and who he is, but it would be nice to have normal problems for once. It seems like my life is becoming more and more stressful as he gets older. He has 3 doctors he sees on a regular basis, soon to be 3 therapies,  SSI people who want monthly updates, plus work, home, and family. I have two calendars just to know what I'm supposed to be doing every day. Looney mommy is about to disappear for a week or so and come back tanned and refreshed. *wishful thinking*