Ami is now 3. He is growing and thriving. He is still under the care of several doctors but doesn't go to therapy any more. He is my world and my world is about to get a rude wake up call.
In 2 weeks baby #2 will be here. This time a girl. Persephone Olivia will be her name. I am so nervous about being a mother of 2. We don't know if she will have NEHI or if she will be normal. We won't know until she gets her. If she does have it we don't know the severity of the disease until she gets here. I remember being pregnant with Ami and being so excited. Now I'm just terrified. I don't get the luxury this time to just assume she will be this little pink thing with 10 fingers and toes. I don't get to just dred the up all night crying, and the spitting up, and the weird poops. I have to worry about respiration rates, calorie intake, nursing while struggling to breathe, and every little germ imaginable. Will she come home on oxygen? Will she have to go through a 100 different tests, blood draws, and xrays? How young will she be the first time she gets put under anesthesia? Therapies and bi-weekly doctor visits.
On top of it all my heart breaks for my son. Will he feel included? Will I be able to take care of an infant while still taking care of him? Will he resent her and the attention she needs? I'm still trying to figure out how it's possible to love another child as much as I love Ami.
2 weeks...
Friday, October 11, 2013
2 weeks
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